
Helping the poor via a brain foundation
Multa Fidrus
The Jakarta Post, Tangerang
Multa Fidrus
The Jakarta Post, Tangerang
Since the Indonesia Brain Foundation (YOI) was established early in 2000, it has helped finance surgical operations and treatment for more than 150 poor people with brain problems across the country.
Most of the patients who have recovered with the help of the foundation would probably not be enjoying the normal lives they do today if Eka Jullanta Wahjoepramono, chairman of the neuroscience center at the Siloam Gleneagles Hospital in Karawaci, Tangerang, had not taken the initiative to establish YOI.
"We established a neurosurgical science center here in 1996; many patients with brain problems come to the hospital for help but not all of them were able to pay the fees," he told The Jakarta Post in an interview recently.
He said that as a neurosurgeon, he could not reject poor patients who really needed help because most were still at productive stages in their lives and had bright futures.
Eka subsequently initiated a search for philanthropists who were willing to dip into their pockets so that he could save the patients. He had many meetings with businessmen such as Muchtar Riyadi of Lippo Group, Aburizal Bakrie (Bakrie Group) and Tahir (Mayapada Bank) to seek donations.
"They never refused financial assistance for surgical operations when I saw them but I didn't feel comfortable asking them for help each time," he said.
Eka then floated the concept of YOI; it received a warm welcome, getting the backing of the businessmen and the Siloam Gleneagles Hospital management.
In addition to helping to finance brain operations for the poor, Eka also hoped to provide education for people with brain injuries and to pay for brain research via the foundation.
"Indonesia has heart and cancer foundations that assist and educate people, but not one for brain-related issues," he said.
He said that a taxi driver he met overseas knew a lot about heart functions and problems because he had watched TV programs on the subject.
"I also want all Indonesians to have greater awareness of the brain and related problems. That's why I plan to educate the public via a special program in cooperation with Metro TV," he said, adding he had obtained sponsorship for the program.
Eka has also initiated research into senile dementia under the supervision of Hollywood Hospital Neuro Center in Perth, Australia, focusing on the clivus, the base bone of skull.
"We shall use 50 elderly patients as respondents throughout the country and the research will take two years," he said, adding that no one has answered satisfactorily why dementia and associated mental illnesses became more common with old age.
He said he was obsessed with the cyberknife, a tool that uses a laser beam to excise brain tumors completely. "We want it to be the last resort for patients with brain problems but the tool costs US$5 million and we cannot afford one; we're always worried about the remains of a tumor growing again in patients' brains," he said.
The problem facing YOI, said Eka, was that the surgical operation and treatment costs for a patient were frequently unpredictable, while the foundation had a limited budget.
"Once, YOI had only Rp 20 million to finance a neurosurgical operation for the wife of a newspaper vendor but the woman suffered from complications; the treatment cost skyrocketed to Rp 60 million," he said.
The cost of operations and treatment for poor patients ranges from Rp 5 million to Rp 140 million.
"Consequently, YOI is often in debt to the hospital since the foundation is yet to have regular donors," said Eka.
He has performed more than 2,800 neurosurgical operations with his team at Siolam since 1996, with a failure rate of only 2.8 percent, lower than the 7.8 percent in the U.S.
YOI offers total aid, partial aid and back-up aid to poor patients who desperately need operations to deal with benign tumors, vascular anomalies, congenital diseases with good prognoses, curable strokes, respectable tumors and curable brain lesions.
Total aid is given to patients from families that are unable to fulfill basic needs based on reliable recommendations, partial aid is given to those who have insufficient ability to finance their operation and treatment, and back up aid is given to those who have funds for the operation but have no back up funds for possible post-operative disease complications.
Born in Klaten Central Java in 1958, Eka entered the medical school of Diponegoro University, Semarang, Central Java, in 1977.
He graduated in 1983 and started his medical career as the head of public health center in Pendahara, Central Kalimantan, in 1984.
Two years later, he worked for the emergency unit at Pantiwilasa Hospital, Semarang, and then continued his studies at the medical school of Padjadjaran University, Bandung, West Java in 1989.
He then worked there as an assistant at the neurosurgery department until he was entrusted to lead the neurosurgery department at Serang general hospital, Banten, in 1995.
He became the consultant of the neurosurgery department at Siloam, Honoris and Usada Insani hospitals in Tangerang and Krakatau Steel hospital in Cilegon.
Eka, who attended postgraduate training in Germany, England, Hungary, Japan; as well as St. Louis University in the U.S. between 1991 and 2003, was appointed chairman of the neuroscience center at Siloam in 2000.
He was the fifth president of the Asian Conference of Neurological Surgeons (2001-2003), Asian Oceanic Skull Base Society; and Honorary sixth president of the Asian Conference of Neurosurgical Surgeon and Foreign Affairs, Indonesia Neurosurgical Society.
Besides the 54 papers and books dealing with neurosurgery he has published since 1991, he has also published four books on brain aneurysms, head injuries, strokes and emergency neurosurgery since 2004.
Married to Hanna Damar, a skin specialist, and father of three children, he spends an average of 16 hours a day at Siloam's neuroscience center, conducting at least two neurosurgical operations each day.
He said the situation between life and death for patients was the driving force for him and members of his team. The pressure is frequently increased by nonstop, 48-hour surgery in difficult operations.
"But we do this because we love our jobs and are concerned about life," he said.
When he has the opportunity, he relaxes in the small garden behind his home in Karawaci, where aquariums and ponds are stocked with fish.
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